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  1. #1
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    Exclamation Stop The Thyroid Madness Blog Newsletter


    Stop The Thyroid Madness Blog Newsletter

    Oh Jolly. Guess What the Endocrine Society Has Spouted This Time?


    Posted: 05 Apr 2016 06:00 PM PDT by Janie Bowthorpe

    “A great deal of intelligence can be invested in ignorance when the need for illusion is deep.” ~ Saul Bellow



    And here we go again.

    On April 1st, 2016 (which is April Fools Day–how appropriate), out comes an article in the Journal of Clinical Endocrinology and Metabolism which presents the latest updated position statement of the Endocrine Society, titled Compounded Bioidentical Hormones in Endocrinology Practice: An Endocrine Society Scientific Statement.

    In other words, their last position statement on certain compounded medications came out in 2006, and this one trumps that one. And the implication is towards “increased regulatory oversight of all bioidentical hormones.”

    Sounds innocuous enough, right? Certainly they are trying to be protective of us, right?

    First, in case you don’t know much about the Endocrine Society, it’s existence began a century ago and is today the oldest “largest global membership organization representing professionals from the intriguing field of endocrinology.” Members come from 110 countries representing approximately 28,000 members, with 40 percent of them located outside the United States. They include scientists, physicians, educators, nurses and students. And you’d think that a society with such a vast array of members from 110 countries might have some innate wisdom, right?

    Gulp.

    The first gist of the article is first about compounded sex hormones… and here’s my summary of their position:

    1. There is no other rationale for compounding your sex hormones other than having an allergy or intolerance.
      ---
    2. Compounded hormones are risky.
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    3. Compounded hormones are dangerous.
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    4. Compounding Pharmacists, who are licensed professionals, are thus dangerous if their product is dangerous.
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    5. Reported successful patient experiences (and their improved lab results) with compounded sex hormones has no validity; only “randomized, double-blind, placebo-controlled trials” have validity.
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    6. Because there are no FDA-approved testosterone preparations for women, it should be completely avoided…so I guess the opposite logic applies?? i.e. that one should embrace FDA-approved medications like statins or the antibiotic Cipro with all their numerous side effects in all-too-many??
      ---
    7. Synthetic estrogen and synthetic progesterone is the way to go.
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    8. Big Pharma products are the way to go.
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    9. Give all your money back to Big Pharma


    If you have a subscription to Medscape, here’s a good summary of what the Endocrine Society stated about compounded sex hormones, including DHEA, but I think my summary above says it all.

    But here’s where it really gets nauseating for informed thyroid patients

    Says the same Endocrine Society, as outlined in the Medscape article above (instead of my interpretation):

    • Levothyroxine (LT4) is bioidentical and a highly effective and safe therapy and is the treatment of choice for hypothyroidism. The complex tissue-specific deiodinase system converts T4 to T3 and supplies the proper amount of T3 to each of the body’s tissues according to its requirements.
      ---
    • Clinicians should evaluate patients with persistent symptoms (despite adequate LT4 therapy) for other causes of their symptoms and encourage patients to engage in healthy lifestyle measures.
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    • Some of these patients may benefit from combination LT4/LT3 therapy, desiccated thyroid hormone, or compounded thyroid hormone, as long as symptoms and thyroid-stimulating hormone (TSH) (free T4) are monitored carefully.


    Oh really??

    To the contrary, millions of thyroid patients from the past 50+ years have noted and/or reported on the following while on T4-only:

    1. Unresolved or accumulating problems like depression, adrenal stress, anxiety, easy weight gain, difficulty losing weight, easy fatigue, poor stamina, easy sickness/slow recovery, joint pain, painful feet, hair loss, dry skin, rising cholesterol, rising blood pressure, heart problems, kidney problems, other mental health issues, and hundreds more as reported here.
      ---
    2. A poor conversion of T4 to T3 due to a myriad of real biological and normal life events which can negatively affect that deiodinase conversion of T4 to T3, such as aging, the normal stress of life circumstances, inflammation, low iron, and just plain bad genetics, to name a few. The body is not meant to live for conversion alone!
      ---
    3. Lousy outcomes from being held hostage to the dubious “normal TSH lab range” are rampant. The TSH is a pituitary hormone and can never discern if all our tissues and organs are getting enough thyroid hormone from conversion alone.


    So all of you who are esteemed members of the Endocrine Society, we as informed thyroid patients who live in our own bodies and have our own intelligence and wisdom, challenge you to consider the following questions:

    1. Can you really call T4-only “effective and safe” in light of the myriad of continued hypothyroid symptoms that patients have noted or reported for 50+ years while on Synthroid, levothyroxine, Tirosent or any other brand of T4-only…sooner or later?
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    2. In light of the fact that T4-only results in numerous organic and tissue problems like depression, a low metabolism, joint pain, high blood pressure, rising cholesterol and so much more…does it really meet the body tissues requirements?
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    3. If T4-only meets all the body’s tissue requirements, why does nature cause a healthy thyroid to give not just T4, but also direct T3 and calcitonin?
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    4. If all those continued and persistent hypothyroid symptoms on Levothyroxine are due to “other causes” or “unhealthy lifestyle choices”, why in the world do these same individuals see them all go away when they get on Natural Desiccated Thyroid and find their optimal dose (which has nothing to do with the TSH)??
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    5. Why is it that when patients are held hostage to the dubious TSH range, they continue to have clear and/or rising hypothyroid symptoms?







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    Stop The Thyroid Madness
    English USA. Online since 2005
    Gå til: Stop The Thyroid Madness
    Til alle norske og danske stoffskifte-pasienter, anbefaler vi boken STOP stofskiftevanviddet, skrevet av verdens ledende pasient-aktivist Janie Bowthorpe, som i 2005 grunnla nettstedet Stop The Thyroid Madness. Boken er utgitt på dansk i 2014. För alla svenska hypotyreos-patienter, rekommenderar vi samma bok, översatt till svenska med titeln Stoppa sköldkörtelskandalen (2012). Til alle gode leger, og pasienter som ønsker å lære mer av "the right stuff", anbefaler vi boken Stop The Thyroid Madness II (2014) med bidrag fra 10 leger MD. I Skandinavia, definitivt de to beste og mest nyttige bøker for hypotyreose-pasienter, for deres familier og venner, og for deres leger.

  2. #2
    Drittlei Gjest

    Angry "Evidensbasert medisin eller vulgærcochranisme?"

    Sitat Opprinnelig skrevet av Endocrine Society
    5. Reported successful patient experiences (and their improved lab results) with compounded sex hormones has no validity; only “randomized, double-blind, placebo-controlled trials” have validity.
    Sitat: "Evidensbasert medisin har med sine randomiserte studier og metaanalyser hatt enorm betydning for klinisk medisin. Vi har nå langt sikrere kunnskap om hva som virker og hva som ikke virker – og om hva som til og med kan være skadelig. Men evidensbasert medisin er dessverre blitt vulgarisert til bare å handle om evidens og til systematisk nedvurdering av erfaringsbasert kunnskap."

    Sitat: "... kliniske retningslinjer, enten de er laget av fagmiljøer, helsemyndigheter eller legemiddelfirmaer, er gjerne svært kategoriske på at pasienter med visse tilstander skal behandles på en helt konkret og såkalt evidensbasert måte. Dette avslører en utilstrekkelig forståelse av biologi og klinisk medisin."

    Sitat: "I et system der man overfokuserer på evidens i snever forstand, risikerer man at tiltak som etter alle solemerker er fornuftige, blir nedprioritert fordi det ikke er mulig å fremskaffe evidens av en slik karakter at den blir akseptert som gyldig."

    Sitat: "Vi mister mønstergjenkjenningen, intuisjonen, observasjon av de ørsmå detaljene, det som får erfarne klinikere til å skjønne hvordan akkurat denne pasienten bør behandles. Denne kunnskapen har vulgærcochranistene eksplisitt plassert nederst i kunnskapspyramiden."

    Sitat: "Som sir David Lawrence Sackett, kanadisk lege og en av pionerene i evidensbasert medisin, uttrykte for drøyt ti år siden: «Evidence-based medicine is the integration of best research evidence with clinical expertise and patient values». Noen må ta ansvar for å bringe evidensbasert medisin tilbake på plass, slik at vi igjen kan få en sunn balanse mellom ulike kilder for kunnskap."

    Sitert fra "Evidensbasert medisin eller vulgærcochranisme?" http://tidsskriftet.no/article/2110719

    Av Torgeir Bruun Wyller
    dr.med., spesialist i indremedisin og i geriatri, professor i geriatri ved Universitetet i Oslo og overlege ved Geriatrisk avdeling. Han har deltatt i planleggingen og gjennomføringen av flere randomiserte, kontrollerte undersøkelser.

  3. #3
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    Lightbulb Sv: Stop The Thyroid Madness Blog Newsletter

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    Stop The Thyroid Madness Blog Newsletter
    The Scandal: Thyroid Patients are Speaking Out, Wall Street Journal, and a new video!

    Posted: 12 Apr 2016 12:50 PM PDT by Janie Bowthorpe

    The push continues, fellow thyroid patients. And it’s getting louder and more widespread.

    This week, Wall Street Journal columnist Melinda Beck, who writes a weekly health column, hit an important gong with her wonderful attention-getting article titled “Doctors Hear Patients’ Calls for New Approaches to Hypothyroidism.”

    “Doctors and patients have been at each other’s throats for decades over how to treat a little gland in the neck—and patients may be gaining ground.” ~ Melinda Beck

    Beck underscored the sad reality that doctors have been relying “on a single form of treatment for hypothyroidism”, aka T4-only like Levothyroxine or Synthroid. And it’s been travesty.

    Why T4-only as a sole treatment is a scandal Read more...


    The SCANDAL of THYROID TREATMENT: Stop the Thyroid Madness



    ANNOUNCING:
    A new powerful YouTube video in honor of thyroid patients worldwide: https://www.youtube.com/watch?v=2n0NfAUyOKo Please share this video to your blogs, private Facebook pages, groups, Twitter, email. Join the PUSH!

    Finally and most importantly, though we appreciate the intense medical training that all our doctors have received, it’s time to consider that we, as informed patients, might have something valuable for our doctors or practitioners to consider and open their minds to. It’s not just about clinical trials. It’s time to RESPECT AND LISTEN TO YOUR PATIENTS, THEIR EXPERIENCES, CLINICAL PRESENTATION, AND THEIR OWN INNATE WISDOM. Learn from us
    Til alle norske og danske stoffskifte-pasienter, anbefaler vi boken STOP stofskiftevanviddet, skrevet av verdens ledende pasient-aktivist Janie Bowthorpe, som i 2005 grunnla nettstedet Stop The Thyroid Madness. Boken er utgitt på dansk i 2014. För alla svenska hypotyreos-patienter, rekommenderar vi samma bok, översatt till svenska med titeln Stoppa sköldkörtelskandalen (2012). Til alle gode leger, og pasienter som ønsker å lære mer av "the right stuff", anbefaler vi boken Stop The Thyroid Madness II (2014) med bidrag fra 10 leger MD. I Skandinavia, definitivt de to beste og mest nyttige bøker for hypotyreose-pasienter, for deres familier og venner, og for deres leger.

  4. #4
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    Lightbulb Sv: Stop The Thyroid Madness Blog Newsletter

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    Stop The Thyroid Madness Blog Newsletter
    There’s a dynamo Thyroid Patient Advocate you should know about!

    Posted: 18 Apr 2016 02:19 PM PDT by Janie Bowthorpe



    I’ve been doing this a long time.

    And early on in my activism, I became acquainted with someone else who was fighting for better hypothyroid diagnosis and treatment. And she was a bulldog! She chose NOT to “walk the fence”… instead speaking the bold truth about the scandal of the current popular thyroid diagnosis, as well as treatment with thyroxine for all too many. She has numerous times over the years written the governing bodies in the United Kingdom as to the problem, including with her communication “hundreds of references” to available research and studies to back up the issue.

    Her name is Sheila Turner, and she’s the founder of Thyroid Patient Advocacy in the UK (TPA-UK).

    And Sheila is a HERO!

    Similar stories

    Like myself and millions of you, Sheila suffered on thyroxine, which she also terms as “monotherapy”. She had “fatigue, weight gain, coldness and hair loss”–the latter even all over her body! And her pain was so bad that she couldn’t even pick herself up off the floor.

    She finally managed to find a maverick doctor who put her on Natural Desiccated Thyroid, and she says “The sun came out!” She has now been happily pain-free and symptom-free for over 13 years. I identify, Sheila!

    And her transformation led to the... Read more on STTM website


    Visit Stop The Thyroid Madness and TPAUK.com
    Til alle norske og danske stoffskifte-pasienter, anbefaler vi boken STOP stofskiftevanviddet, skrevet av verdens ledende pasient-aktivist Janie Bowthorpe, som i 2005 grunnla nettstedet Stop The Thyroid Madness. Boken er utgitt på dansk i 2014. För alla svenska hypotyreos-patienter, rekommenderar vi samma bok, översatt till svenska med titeln Stoppa sköldkörtelskandalen (2012). Til alle gode leger, og pasienter som ønsker å lære mer av "the right stuff", anbefaler vi boken Stop The Thyroid Madness II (2014) med bidrag fra 10 leger MD. I Skandinavia, definitivt de to beste og mest nyttige bøker for hypotyreose-pasienter, for deres familier og venner, og for deres leger.

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